Two faces of patient advocacy: the current controversy in newborn screening
Author:
Publisher
BMJ
Subject
Health Policy,Arts and Humanities (miscellaneous),Issues, ethics and legal aspects,Health (social science)
Reference41 articles.
1. Newborn screening: rationale for a comprehensive, fully integrated public health system;McCabe;Mol Genet Metab,2002
2. Patient advocacy in newborn screening: continuities and discontinuities;Paul;Am J Med Genet C Semin Med Genet,2008
3. Principles and practice of screening for disease. France: World Health Organization;Wilson,1968
4. Expanding newborn screening: process, policy, and priorities;Moyer;Hastings Cent Rep,2008
5. Medicine. Fast technology drives new world of newborn screening;Marshall;Science,2001
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1. Why cystic fibrosis newborn screening programs have failed to meet original expectations… thus far;Molecular Genetics and Metabolism;2023-09
2. Is Our Newborn Screening Working Well? A Literature Review of Quality Requirements for Newborn Blood Spot Screening (NBS) Infrastructure and Procedures;International Journal of Neonatal Screening;2023-06-22
3. Identifying and overcoming barriers to harmonize newborn screening programs through consensus strategies;Critical Reviews in Clinical Laboratory Sciences;2020-07-21
4. Parents like me: biosociality and lay expertise in self-help groups of parents of screen-positive newborns;New Genetics and Society;2018-03-13
5. Fostering caring relationships: Suggestions to rethink liberal perspectives on the ethics of newborn screening;Bioethics;2018-02-14
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