Patient advocacy in newborn screening: Continuities and discontinuities-Reference-Cited by-同舟云学术

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Patient advocacy in newborn screening: Continuities and discontinuities

Published:2008 Issue:1 Volume:148C Page:8-14
ISSN:1552-4868
Container-title:American Journal of Medical Genetics Part C: Seminars in Medical Genetics
language:en
Short-container-title:Am. J. Med. Genet.

Author:

Paul Diane B.

Publisher

Wiley

Subject

Genetics (clinical),Genetics

Reference43 articles.

1. American College of Medical Genetics (ACMG). 2005. Newborn screening: Toward a uniform screening panel and system. Available at http://mchb.hrsa.gov/screening.

2. Changing perspectives on the benefits of newborn screening

3. Advertising and disclosure of funding on patient organisation websites: a cross-sectional survey

4. The squeaky wheel gets the grease

5. Newborn Screening: The Spigot is Open and Threatens to Become a Flood

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2. Patient Advocacy in Dementia: The Culture and Ethics of Policy-Making and Representation;Advances in Neuroethics;2021

3. Inborn errors of metabolism in the 21st century: past to present;Annals of Translational Medicine;2018-12

4. An Assessment of Public Preferences for Newborn Screening Using Best–Worst Scaling;The Journal of Pediatrics;2018-10

5. Commercial Interests, the Technological Imperative, and Advocates:Three Forces Driving Genomic Sequencing in Newborns;Hastings Center Report;2018-07

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