Parents like me: biosociality and lay expertise in self-help groups of parents of screen-positive newborns
Author:
Affiliation:
1. Department of Sociology and Anthropology, Ben-Gurion University of the Negev, Beer-Sheva, Israel
2. Department of Sociology, UCLA, Los Angeles, California, USA
Funder
United States-Israel Binational Science Foundation
Publisher
Informa UK Limited
Subject
Health Policy,Genetics,Health (social science),Issues, ethics and legal aspects
Link
https://www.tandfonline.com/doi/pdf/10.1080/14636778.2018.1451315
Reference61 articles.
1. From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet
2. Two faces of patient advocacy: the current controversy in newborn screening
3. Coping with PKU: results of narrative interviews with parents
4. Supporting Family Adaptation to Presymptomatic and "Untreatable" Conditions in an Era of Expanded Newborn Screening
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