Innovation by patients with rare diseases and chronic needs

Author:

Oliveira Pedro,Zejnilovic Leid,Canhão Helena,von Hippel Eric

Publisher

Springer Science and Business Media LLC

Subject

Pharmacology (medical),Genetics (clinical),General Medicine

Reference26 articles.

1. Rodwell C, Aymé S, eds, “2014 Report on the State of the Art of Rare Disease Activities in Europe”, July 2014, European Union. ( http://www.eucerd.eu/upload/file/Reports/2014ReportStateofArtRDActivities.pdf ).

2. Westermark K, Holm BB, Söderholm M, Llinares-Garcia J, Rivière F, Aarum S, et al. European regulation on orphan medicinal products: 10 years of experience and future perspectives. Nat Rev Drug Discov. 2011;10:341–9.

3. Song P, Gao J, Inagaki Y, Kokudo N, Tang W. Rare diseases, orphan drugs, and their regulation in Asia: current status and future perspectives. Intractable Rare Dis Res. 2012;1(1):3–9.

4. Griggs RC, Batshaw M, Dunkle M, Gopal-Srivastava R, Kaye E, Krischer J, et al. Clinical research for rare disease: opportunities, challenges, and solutions. Mol Genet Metab. 2009;96:20–6.

5. Acemoglu D, Linn J. Market size in innovation: theory and evidence from the pharmaceutical industry. Q J Econ. 2004;119(August):1049–90.

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