Validation of the pedHAL <sub>short</sub> and HAL <sub>short</sub> in Dutch children and adults with haemophilia-Reference-Cited by-同舟云学术

Validation of the pedHAL _short and HAL _short in Dutch children and adults with haemophilia

Published:2022-07-29 Issue:6 Volume:28 Page:1007-1015
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Kuijlaars Isolde A. R.¹^ORCID,van der Net Janjaap²^ORCID,van Vulpen Lize F. D.¹^ORCID,Driessens Mariette H. E.³,Schols Saskia E. M.⁴⁵,Tan Melanie⁶,Gouw Samantha C.⁷⁸^ORCID,Fischer Kathelijn¹^ORCID

Affiliation:

1. Center for Benign Haematology Thrombosis and Haemostasis Van Creveldkliniek University Medical Center Utrecht Utrecht University Utrecht the Netherlands

2. Center for Child Development Exercise and Physical Literacy University Medical Center Utrecht Utrecht University University Children's Hospital Utrecht the Netherlands

3. Netherlands Haemophilia Society (NVHP) Nijkerk the Netherlands

4. Department of Haematology Radboud University Medical Center Nijmegen the Netherlands

5. Haemophilia Treatment Center Nijmegen‐Eindhoven‐Maastricht Radboud University Medical Center Nijmegen the Netherlands

6. Department of Vascular Medicine Amsterdam Cardiovascular Sciences Amsterdam University Medical Centers University of Amsterdam Amsterdam the Netherlands

7. Emma Children's Hospital Amsterdam UMC University of Amsterdam Pediatric Hematology Amsterdam the Netherlands

8. Department of Clinical Epidemiology Leiden University Medical Center Leiden the Netherlands

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14628

Reference27 articles.

1. Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List

2. Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List

3. Functional limitations in Romanian children with haemophilia: further testing of psychometric properties of the Paediatric Haemophilia Activities List

4. Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal)

5. Choosing outcome assessment tools in haemophilia care and research: a multidisciplinary perspective

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1. Validity and reliability test of the Indonesian version of the PedHALshort questionnaire;Haemophilia;2024-04-05

2. The value‐based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia;Haemophilia;2024-02-05