Validity and reliability test of the Indonesian version of the PedHALshort questionnaire

Author:

Chozie Novie Amelia1ORCID,Ayu Dewi Rosariah23ORCID,Medise Bernie Endyarni1,Marsubrin Putri Maharani Tristanita1,Sari Teny Tjitra1,Yuniar Irene1,Wahyuni Luh Karunia4

Affiliation:

1. Departement of Child Health Cipto Mangunkusumo General Hospital Faculty of Medicine Universitas Indonesia Jakarta Indonesia

2. Pediatric Subspecialist Consultant Program, Departement of Child Health Cipto Mangunkusumo General hospital, Faculty of Medicine Universitas Indonesia Jakarta Indonesia

3. Department of Child Health Mohammad Hoesin General Hospital Universitas Sriwijaya Medical School Palembang Indonesia

4. Department of Physical Medicine and Rehabilitation Cipto Mangunkusumo General Hospital, Faculty of Medicine Universitas Indonesia Jakarta Indonesia

Abstract

AbstractIntroductionThe PedHAL questionnaire is employed in measuring the activities of haemophilia children. The PedHALshort was developed in 2022 to determine the most relevant item for the assessment. Haemo‐QoL questionnaire assesses the quality of life of haemophilia children.AimDetermine the validity and reliability of the PedHALshort Indonesia language version compared to the Haemo‐QoL in the Indonesian population.MethodsA cross‐sectional study was conducted in Jakarta, Indonesia. The subjects were children (4‐16 years old) with moderate or severe haemophilia A or B with repeated joint bleeding. The daily activity was assessed using the PedHALshorts and Haemo‐QoL. The validity and reliability were tested. The validity was determined with Pearson correlation test, construct validity was assessed using convergent and discriminant validity. The Spearman correlation was used to determine which domains of Haemo‐QoL correlated with PedHALshort. The reliability was analyzed using test‐retest reliability. Cronbach's α was used to determined internal consistency.ResultsFifty children were included in the study (78% haemophilia A, 70% severe group). All domains were valid (r > .284). The convergent validity test showed PedHALshort had a moderate negative correlation with physical health and sports school domain of Haemo‐QoL (r = ‐.479, p < .001). The discriminant validity test showed the PedHALshort demonstrated a moderate negative correlation with physical health (r = ‐.585), view (r = ‐.590), sport school domain (r = ‐.430) in severe haemophilia subjects. The internal consistency of the PedHALshort questionnaire was high (Cronbach's α of .85 (.74–.92)).ConclusionThe PedHALshort is valid and reliable, hence, it can be used to measure the functional physical activity of children with haemophilia.

Funder

Direktorat Riset and Pengembangan, Universitas Indonesia

Publisher

Wiley

Reference15 articles.

1. World Federation of Hemophilia Report on the Annual Global Survey 2021.Worl Federation of Hemophilia.Canada;2022:38

2. Past, present and future of hemophilia: a narrative review

3. Pathophysiology of Hemophilic Arthropathy

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