Choosing outcome assessment tools in haemophilia care and research: a multidisciplinary perspective

Author:

Fischer K.1,Poonnoose P.2,Dunn A. L.3,Babyn P.4,Manco-Johnson M. J.5,David J. A.6,van der Net J.7,Feldman B.8,Berger K.9,Carcao M.10,de Kleijn P.11,Silva M.12,Hilliard P.13,Doria A.14,Srivastava A.15,Blanchette V.10,

Affiliation:

1. Van Creveldkliniek; University Medical Center Utrecht; Utrecht The Netherlands

2. Department of Orthopaedics; Christian Medical College; Vellore Tamil Nadu India

3. Division of Hematology and Oncology; Nationwide Children's Hospital and The Ohio State University; Columbus OH USA

4. Department of Medical Imaging; University of Saskatchewan and Saskatoon Health Region Royal University Hospital; Saskatoon SK Canada

5. Section of Hematology/Oncology/Bone Marrow Transplantation; Department of Pediatrics; University of Colorado Anschutz Medical Campus and Children's Hospital; Aurora CO USA

6. Department of PMR; Christian Medical College; Vellore Tamil Nadu India

7. Child Health Services; Child Development and Exercise Center; University Medical Center and Children's Hospital; Utrecht The Netherlands

8. Division of Rheumatology; Department of Paediatrics and Child Health Evaluative Sciences; Research Institute; Hospital for Sick Children; University of Toronto; Toronto ON Canada

9. Division of Haematology/Oncology; University Hospital of Munich; Munich Germany

10. Division of Haematology/Oncology; Department of Paediatrics and Child Health Evaluative Sciences; Research Institute; Hospital for Sick Children; University of Toronto; Toronto ON Canada

11. Department of Rehabilitation, Nursing Science and Sports, and Van Creveldkliniek; University Medical Center Utrecht; Utrecht The Netherlands

12. Department of Orthopaedic Surgery; Orthopaedic Institute for Children; David Geffen School of Medicine at UCLA; Los Angeles CA USA

13. Department of Rehabilitation; Hospital for Sick Children; University of Toronto; Toronto ON Canada

14. Department of Diagnostic Imaging; Research Institute; Hospital for Sick Children; University of Toronto; Toronto ON Canada

15. Department of Haematology; Christian Medical College; Vellore Tamil Nadu India

Funder

Novo Nordisk

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Reference99 articles.

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