Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research
Author:
Affiliation:
1. Boston Children’s Hospital, MA, USA
2. Harvard Medical School, Boston, MA, USA
3. McLean Hospital, Belmont, MA, USA
4. Johns Hopkins University School of Medicine, Baltimore, MD, USA
5. Partners Personalized Medicine, Boston, MA, USA
Abstract
Publisher
SAGE Publications
Subject
Communication,Education,Social Psychology
Link
http://journals.sagepub.com/doi/pdf/10.1177/1556264615599620
Reference30 articles.
1. The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results
2. Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
3. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium
4. Psychometric Evaluation of the Health Information Orientation Scale
5. Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants
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3. Preferences and expectations of feedback of individual genetic research results in African genomics: Views of South African parents of children with neurodevelopmental disorders;Open Research Africa;2022-12-13
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