The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results
Author:
Affiliation:
1. Johns Hopkins University School of Medicine, Baltimore, MD, USA
2. Northeastern University, Boston, MA, USA
3. Harvard Medical School, Boston, MA, USA
4. Boston Children’s Hospital, MA, USA
5. Partners Personalized Medicine, Boston, MA, USA
Abstract
Publisher
SAGE Publications
Subject
Communication,Education,Social Psychology
Link
http://journals.sagepub.com/doi/pdf/10.1177/1556264615572092
Reference33 articles.
1. Return of incidental findings in genomic medicine: measuring what patients value—development of an instrument to measure preferences for information from next-generation testing (IMPRINT)
2. Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time
3. Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study
4. Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group
5. Health Behavior Changes After Genetic Risk Assessment for Alzheimer Disease: The REVEAL Study
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1. Return of Results in Genomic Research Using Large-Scale or Whole Genome Sequencing: Toward a New Normal;Annual Review of Genomics and Human Genetics;2023-08-25
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3. Return of individual research results from genomic research: A systematic review of stakeholder perspectives;PLOS ONE;2021-11-08
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