Managing Pandora’s Box: Familial Expectations around the Return of (Future) Germline Results-Reference-Cited by-同舟云学术

Managing Pandora’s Box: Familial Expectations around the Return of (Future) Germline Results

Published:2022-04-26 Issue:3 Volume:13 Page:152-165
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Johnson Liza-Marie¹^ORCID,Mandrell Belinda N.²^ORCID,Li Chen³,Lu Zhaohua³,Gattuso Jami²,Harrison Lynn W.⁴,Mori Motomi³,Ouma Annastasia A.⁴,Pritchard Michele²,Sharp Katianne M. Howard⁵,Nichols Kim E.⁴

Affiliation:

1. Department of Oncology, St. Jude Children’s Research Hospital, Memphis, TN, USA

2. Department of Pediatrics, Division of Nursing Research, St. Jude Children’s Research Hospital, Memphis, TN, USA

3. Department of Biostatistics, St. Jude Children’s Research Hospital, Memphis, TN, USA

4. Department of Oncology, Division of Cancer Predisposition, St. Jude Children’s Research Hospital, Memphis, TN, USA

5. Department of Psychology, St. Jude Children’s Research Hospital, Memphis, TN, USA

Funder

Cancer Center Core

CA21756

National Institutes of Health, NHGRI

ALSAC

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2022.2063994

Reference72 articles.

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3. Underdiagnoses resulting from variant misinterpretation: Time for systematic reanalysis of whole exome data?

4. Predictive genetic testing for adult-onset disorders in minors: a critical analysis of the arguments for and against the 2013 ACMG guidelines

5. Is there a duty to reinterpret genetic data? The ethical dimensions

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