Author:
Bollinger Juli M.,Zuk Peter D.,Majumder Mary A.,Versalovic Erika,Villanueva Angela G.,Hsu Rebecca L.,McGuire Amy L.,Cook-Deegan Robert
Abstract
A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.
Publisher
Cambridge University Press (CUP)
Subject
Health Policy,General Medicine,Issues, ethics and legal aspects
Cited by
13 articles.
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