Author:
Villanueva Angela G.,Cook-Deegan Robert,Koenig Barbara A.,Deverka Patricia A.,Versalovic Erika,McGuire Amy L.,Majumder Mary A.
Abstract
Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe.
Publisher
Cambridge University Press (CUP)
Subject
Health Policy,General Medicine,Issues, ethics and legal aspects
Reference34 articles.
1. 4. National Institutes of Health, NIH Strategic Plan for Data Science (2018) at 9 and 29, available at (last visited January 4, 2019). The NIH Data Commons will integrate datasets so that they can be interrogated simultaneously.
2. Should you profit from your genome?
3. 6. See Deverka, supra note 3.
Cited by
20 articles.
订阅此论文施引文献
订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献