Ethical and Legal Considerations in Genomic Data Sharing: Evolution of the Discourse and the Road Ahead
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Publisher
Springer International Publishing
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https://link.springer.com/content/pdf/10.1007/978-3-031-29451-8_19
Reference124 articles.
1. ACMG Board of Directors. (2017). Laboratory and clinical genomic data sharing is crucial to improving genetic health care: A position statement of the American College of Medical Genetics and Genomics. Genetics in Medicine, 19, 721–722.
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3. Ameur, A., Dahlberg, J., Olason, P., et al. (2017). SweGen: A whole-genome data resource of genetic variability in a cross-section of the Swedish population. European Journal of Human Genetics, 25, 1253–1260.
4. Association for Molecular Pathology. (2021). Association for Molecular Pathology Position Statement: Variant data sharing. Association for Molecular Pathology.
5. Bakken, I. J., Ariansen, A. M. S., Knudsen, G. P., et al. (2020). The Norwegian Patient Registry and the Norwegian Registry for Primary Health Care: Research potential of two nationwide health-care registries. Scandinavian Journal of Public Health, 48, 49–55.
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