Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability-Reference-Cited by-同舟云学术

Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Published:2018-04-24 Issue:3 Volume:25 Page:355-368
ISSN:0907-5682
Container-title:Childhood
language:en
Short-container-title:Childhood

Author:

Skyrme Sarah Louise¹^ORCID,Woods Simon²^ORCID

Affiliation:

1. University of Cumbria, UK; Newcastle University, UK

2. Newcastle University, UK

Abstract

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

Funder

Economic and Social Research Council, & TREAT-NMD

Publisher

SAGE Publications

Subject

Developmental and Educational Psychology

Link

http://journals.sagepub.com/doi/pdf/10.1177/0907568218769365

Reference57 articles.

1. Other Voices, Other Rooms: Reflections on Talking to Young Men with Duchenne Muscular Dystrophy and Their Families About Transition to Adulthood

2. ‘Wasting precious time’: young men with Duchenne muscular dystrophy negotiate the transition to adulthood

3. In the genes or in the stars? Children's competence to consent.

4. Competent children? Minors’ consent to health care treatment and research

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