Other Voices, Other Rooms: Reflections on Talking to Young Men with Duchenne Muscular Dystrophy and Their Families About Transition to Adulthood
Author:
Affiliation:
1. School for Policy Studies; University of Bristol; Bristol; UK
Publisher
Wiley
Subject
Life-span and Life-course Studies,Education,Health (social science)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1099-0860.2012.00437.x/fullpdf
Reference23 articles.
1. Moral tales: parents’ stories of encounters with the health profession;Baruch;Social Health and Illness,1981
2. Hegemonic masculinity: rethinking the concept;Connell;Gender & Society,2005
3. Where are the children's experiences? Analysing social and cultural exclusion in ‘special’ and ‘mainstream’ schools;Davis;Disability & Society,2001
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1. The Importance of Implementing a Transition Strategy for Patients with Muscular Dystrophy: From Child to Adult—Insights from a Tertiary Centre for Rare Neurological Diseases;Children;2023-05-28
2. ‘It is easier to not allow them to see your disability straight away, to see you as a person’: An Interpretative Phenomenological Analysis of video gaming from the perspectives of men with Duchenne Muscular Dystrophy;Palliative Medicine;2023-05-02
3. Ableist Constructions of Time? Boys and Men with Duchenne Muscular Dystrophy Managing the Uncertainty of a Shorter Life;Scandinavian Journal of Disability Research;2020
4. Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability;Childhood;2018-04-24
5. “The Things that are Inside of You are Horrible”: Children and Young Men with Duchenne Muscular Dystrophy Talk about the Impact of Living with a Long-term Condition;Valuing Disabled Children and Young People;2018-04-19
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