Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks-Reference-Cited by-同舟云学术

Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks

Published:2021-12-01 Issue:6 Volume:19 Page:483-492
ISSN:1947-5535
Container-title:Biopreservation and Biobanking
language:en
Short-container-title:Biopreservation and Biobanking

Author:

Iacomussi Sofia¹^ORCID,Casareto Lorena²^ORCID,Locatelli Manuela²^ORCID,Wang Chiuhui Mary³^ORCID,Borroni Simona⁴,Mascalzoni Deborah⁵⁶,Sangiorgi Luca²,Coviello Domenico,Zecchinelli Anna Lena,Renieri Alessandra,Pegoraro Elena,Sciacco Monica,Andreetta Francesca,Merla Giuseppe,Nigro Vincenzo,Garavaglia Barbara,Filocamo Mirella,Baldo Chiara,Goldwurm Stefano,Cilia Roberto,Angelini Corrado,Moggio Maurizio,Mora Marina,Politano Luisa,

Affiliation:

1. CIRSFID ALMA-AI, University of Bologna, Bologna, Italy.

2. Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy.

3. Fondazione Telethon, Milano, Italy.

4. Gruppo Famiglie Dravet Associazione Onlus, Milano, Italy.

5. Istituto di Biomedicina, Eurac Research, Bolzano, Italy.

6. Centro di Biomedicina, Department of Public Health, Uppsala University, Sweden.

Publisher

Mary Ann Liebert Inc

Subject

Cell Biology,General Biochemistry, Genetics and Molecular Biology,General Medicine,Medicine (miscellaneous)

Link

https://www.liebertpub.com/doi/pdf/10.1089/bio.2021.0057

Reference27 articles.

1. From the principles of genomic data sharing to the practices of data access committees

2. ‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration

3. Access policies in biobank research: what criteria do they include and how publicly available are they? A cross-sectional study

4. Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Cited by 1 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Celebrating Women's Contributions to Scientific Advancement;Biopreservation and Biobanking;2022-04-01