From the principles of genomic data sharing to the practices of data access committees
Author:
Affiliation:
1. Centre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven Belgium
2. Centre of Genomics and Policy McGill University Montreal QC Canada
Publisher
EMBO
Subject
Molecular Medicine
Link
https://onlinelibrary.wiley.com/doi/pdf/10.15252/emmm.201405002
Reference14 articles.
1. ‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration
2. Paper Retracted Following Genome Data Breach
3. Genomic databases access agreements: legal validity and possible sanctions
4. Data sharing in genomics — re-shaping scientific practice
5. Data sharing policy design for consortia: challenges for sustainability;Kaye J;Genome Med,2014
Cited by 50 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. Public attitudes towards genomic data sharing: results from a provincial online survey in Canada;BMC Medical Ethics;2023-10-07
2. FAIR, ethical, and coordinated data sharing for COVID-19 response: a scoping review and cross-sectional survey of COVID-19 data sharing platforms and registries;The Lancet Digital Health;2023-10
3. Artificial intelligence and medical research databases: ethical review by data access committees;BMC Medical Ethics;2023-07-08
4. Developing Policy for the Healthy Life Trajectories Initiative: Going from National to International;Biopreservation and Biobanking;2023-06-01
5. Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members;Biopreservation and Biobanking;2023-05-16
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3