Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?-Reference-Cited by-同舟云学术

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Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Published:2017-10 Issue:5 Volume:15 Page:469-474
ISSN:1947-5535
Container-title:Biopreservation and Biobanking
language:en
Short-container-title:Biopreservation and Biobanking

Author:

Shabani Mahsa¹,Dove Edward S.²,Murtagh Madeleine³,Knoppers Bartha Maria⁴,Borry Pascal¹

Affiliation:

1. Department of Public Health and Primary Care, Center for Biomedical Ethics and Law, University of Leuven, Leuven, Belgium.

2. J. Kenyon Mason Institute for Medicine, Life Sciences and the Law, School of Law, University of Edinburgh, Edinburgh, United Kingdom.

3. School of Population and Health Sciences, University of Newcastle, Newcastle upon Tyne, United Kingdom.

4. Centre of Genomics and Policy, McGill University, Montreal, Canada.

Publisher

Mary Ann Liebert Inc

Subject

Cell Biology,General Biochemistry, Genetics and Molecular Biology,General Medicine,Medicine (miscellaneous)

Link

http://www.liebertpub.com/doi/pdf/10.1089/bio.2017.0045

Reference20 articles.

1. Is Deidentification Sufficient to Protect Health Privacy in Research?

2. Data sharing in genomics — re-shaping scientific practice

3. “You want the right amount of oversight”: interviews with data access committee members and experts on genomic data access

4. A Mechanism for Controlled Access to GWAS Data: Experience of the GAIN Data Access Committee

5. Ethical Data Release in Genome-Wide Association Studies in Developing Countries

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