Data sharing in genomics — re-shaping scientific practice

Author:

Kaye Jane,Heeney Catherine,Hawkins Naomi,de Vries Jantina,Boddington Paula

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Genetics,Molecular Biology

Reference28 articles.

1. The Digital Archiving Consultancy (DAC), The Bioinformatics Research Centre, University of Glasgow (BRC), The National e-Science Centre (NeSC). Large-scale Data Sharing in the Life Sciences: Data Standards, Incentives, Barriers and Funding Models (The “Joint Data Standards Study”). [online], < http://www.nesc.ac.uk/technical_papers/UKeS-2006-02.pdf > (2005).

2. McCarthy, M. I. et al. Genome-wide association studies for complex traits: consensus, uncertainty and challenges. Nature Rev. Genet. 9, 356–369 (2008).

3. Gibbons, S. M. C., Kaye, J., Smart, A., Heeney, C. & Parker, M. Governing genetic databases: challenges facing research regulation and practice. J. Law Soc. 34, 163–189 (2007).

4. Couzin, J. Genetic privacy. Whole-genome data not anonymous, challenging assumptions. Science 321, 1278 (2008).

5. [No authors listed]. DNA databases shut after identities compromised. Nature 455, 13 (2008).

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