Navigating Decisional Discord: The Pediatrician’s Role When Child and Parents Disagree

Author:

Sisk Bryan A.1,DuBois James2,Kodish Eric3,Wolfe Joanne4,Feudtner Chris5

Affiliation:

1. Department of Pediatrics, St Louis Children’s Hospital, St Louis, Missouri;

2. Department of Medicine, Washington University School of Medicine, St Louis, Missouri;

3. Pediatrics Institute and Department of Bioethics, Lerner College of Medicine, Cleveland Clinic, Cleveland, Ohio;

4. Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute and Department of Medicine, Boston Children’s Hospital, Boston, Massachusetts; and

5. Department of Medical Ethics, The Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania

Abstract

From the time when children enter the preteen years onward, pediatric medical decision-making can entail a complex interaction between child, parents, and pediatrician. When the child and parents disagree regarding medical decisions, the pediatrician has the challenging task of guiding the family to a final decision. Unresolved discord can affect family cohesiveness, patient adherence, and patient self-management. In this article, we outline 3 models for the pediatrician’s role in the setting of decisional discord: deference, advocative, and arbitrative. In the deference model, the pediatrician prioritizes parental decision-making authority. In the advocative model, the pediatrician advocates for the child’s preference in decision-making so long as the child’s decision is medically reasonable. In the arbitrative model, the pediatrician works to resolve the conflict in a balanced fashion. Although each model has advantages and disadvantages, the arbitrative model should serve as the initial model in nearly all settings. The arbitrative model is likely to reach the most beneficial decision in a manner that maintains family cohesiveness by respecting the authority of parents and the developing autonomy of children. We also highlight, however, occasions when the deference or advocative models may be more appropriate. Physicians should keep all 3 models available in their professional toolkit and develop the wisdom to deploy the right model for each particular clinical situation.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

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