A fine balance and a shared learning journey: Exploring healthcare engagement through the experiences of youth with Neuromuscular Disorders

Author:

Travlos Vivienne1,Bulsara Caroline2,Patman Shane1,Downs Jenny34

Affiliation:

1. School of Physiotherapy, The University of Notre Dame Australia, Perth, WA, Australia

2. School of Nursing and Midwifery, The University of Notre Dame Australia, Perth, WA, Australia

3. Telethon Kids Institute, Perth, WA, Australia

4. School of Physiotherapy and Exercise Science, Curtin University, Perth, WA, Australia

Publisher

IOS Press

Subject

Clinical Neurology,Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation

Reference57 articles.

1. Domiciliary noninvasive positive airway pressure therapy in children;Amin;Pediatric Pulmonology,2016

2. Duchenne muscular dystrophy: Continuous noninvasive ventilatory support prolongs survival;Bach;Respiratory Care,2011

3. Living in transition – experiences of health and well-being and the needs of adolescents with cerebral palsy;Björquist;Child: Care, Health And Development,2015

4. The TREAT-NMD Duchenne muscular dystrophy registries: Conception, design and utilisation by industry and academia;Bladen;Human Mutation,2013

5. Using thematic analysis in psychology;Braun;Qualitative Research in Psychology,2006

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