Parent Carer Quality of Life and Night-Time Attendance in Non-Ambulant Youth with Neuromuscular Disorders-Reference-Cited by-同舟云学术

Parent Carer Quality of Life and Night-Time Attendance in Non-Ambulant Youth with Neuromuscular Disorders

Published:2021-05-04 Issue:7 Volume:24 Page:456-465
ISSN:1751-8423
Container-title:Developmental Neurorehabilitation
language:en
Short-container-title:Developmental Neurorehabilitation

Author:

Travlos Vivienne¹^ORCID,Patman Shane¹^ORCID,Downs Jenny²³^ORCID,Hince Dana⁴,Wilson Andrew C.²⁵

Affiliation:

1. School of Physiotherapy, University of Notre Dame Australia, Fremantle, Western Australia, Australia

2. Telethon Kids Institute, Hospital Avenue, Nedlands, Western Australia, Australia

3. School of Physiotherapy and Exercise Science, Curtin University, Bentley, Western Australia, Australia

4. Institute of Health Research, University of Notre Dame Australia, Fremantle, Western Australia, Australia

5. Respiratory Medicine, Perth Children’s Hospital, Hospital Avenue, Nedlands, Western Australia, Australia

Funder

Sir Harold and Sylvia Rowell PhD Scholarship of the Muscular Dystrophy Association of Western Australia; and the Collaborative Research Network of The University of Notre Dame Australia

Muscular Dystrophy Western Australia

Publisher

Informa UK Limited

Subject

Developmental Neuroscience,Rehabilitation,General Medicine,Pediatrics, Perinatology, and Child Health

Link

https://www.tandfonline.com/doi/pdf/10.1080/17518423.2021.1908440

Reference48 articles.

1. Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care

2. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management

3. Duchenne muscular dystrophy: Survival by cardio-respiratory interventions

4. Domiciliary noninvasive positive airway pressure therapy in children

5. Caregiving in the shadows: National analysis of health outcomes and intensity and duration of care among those who care for people with mental illness and for people with developmental disabilities

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