“No SMA can hold”: Nursing care for children with spinal muscular atrophy. Descriptive analysis of two case studies
Author:
Publisher
Elsevier BV
Subject
Nursing (miscellaneous)
Reference19 articles.
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2. Health and quality of life of ventilator-dependent children;Noyes;J Adv Nurs,2006
3. Spinal muscular atrophy: diagnosis, treatment and future prospects;Baioni;J Pediatr (Rio J),2007
4. A fine balance and a shared learning journey: exploring healthcare engagement through the experiences of youth with Neuromuscular Disorders;Travlos;NeuroRehabilitation,2016
5. Coproduction: when users define quality;Elwyn;BMJ Qual Saf,2020
Cited by 1 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. Investigating the Application of Orem’s Self-care Nursing Theory for Spinal Muscular Atrophy: A Case Study Design;Journal of Pediatrics Review;2024-01-01
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