“No SMA can hold”: Nursing care for children with spinal muscular atrophy. Descriptive analysis of two case studies
Author:
Publisher
Elsevier BV
Subject
Nursing (miscellaneous)
Reference19 articles.
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2. Health and quality of life of ventilator-dependent children;Noyes;J Adv Nurs,2006
3. Spinal muscular atrophy: diagnosis, treatment and future prospects;Baioni;J Pediatr (Rio J),2007
4. A fine balance and a shared learning journey: exploring healthcare engagement through the experiences of youth with Neuromuscular Disorders;Travlos;NeuroRehabilitation,2016
5. Coproduction: when users define quality;Elwyn;BMJ Qual Saf,2020
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