Impacts for Children Living with Genetic Muscle Disorders and their Parents – Findings from a Population-Based Study-Reference-Cited by-同舟云学术

Impacts for Children Living with Genetic Muscle Disorders and their Parents – Findings from a Population-Based Study

Published:2018-08-02 Issue:3 Volume:5 Page:341-352
ISSN:2214-3599
Container-title:Journal of Neuromuscular Diseases
language:
Short-container-title:JND

Author:

Jones Kelly M.¹,O’Grady Gina²,Rodrigues Miriam J.³,Ranta Anna⁴,Roxburgh Richard H.⁵,Love Donald R.⁶,Theadom Alice¹,

Affiliation:

1. National Institute for Stroke and Applied Neurosciences, School of Public Health and Psychosocial Studies, Faculty of Health and Environmental Studies, Auckland University of Technology, Auckland, New Zealand

2. Paediatric Neurology, Starship Children’s Health, Auckland, New Zealand

3. Neurology Department, Auckland City Hospital, Auckland, New Zealand and the Muscular Dystrophy Association of New Zealand, Auckland, New Zealand

4. Departmentof Neurology, Wellington Regional Hospital, University of Otago, New Zealand

5. Neurology Department, Auckland City Hospital, Auckland, New Zealand and the Centre for Brain Research, University of Auckland, Auckland, New Zealand

6. Diagnostic Genetics, LabPLUS, Auckland City Hospital, Auckland, New Zealand

Publisher

IOS Press

Subject

Neurology (clinical),Neurology

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4. Quality of life measures in chronic diseases in childhood;Eiser;Health Technology Assessment,2001

5. Law M . Hanna S . Anaby D . Kertoy M . King G . Xu L .Health-related quality of life of children with physical disabilities: A longitudinal study. BMC Pediatrics. 2014;14(26).

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