Systematic Review on Family Functioning in Families of Children With Rare Diseases-Reference-Cited by-同舟云学术

Systematic Review on Family Functioning in Families of Children With Rare Diseases

Published:2024 Issue:1 Volume:45 Page:39-47
ISSN:1886-1415
Container-title:Papeles del Psicólogo - Psychologist Papers
language:en
Short-container-title:Pap. Psicol.

Author:

Ortega Javiera¹^ORCID,Vázquez Natalia²^ORCID,Assalone Florencia²^ORCID,Vázquez Victoria²^ORCID

Affiliation:

1. Pontificia Universidad Católica Argentina

2. Facultad de Ciencias Biomédicas, Universidad Austral, Buenos Aires (Argentina)

Abstract

The present study is a systematic review of the research on family functioning in families who have a child with a rare disease. The research was carried out using the databases Pubmed, EBSCO, and Google Scholar, following PRISMA guidelines. After applying the inclusion and exclusion criteria to the 460 articles initially found, a total of 49 articles made up the final sample. The following topics regarding family functioning were identified: impact of diagnosis; caregiver’s role and responsibilities; family functioning; impact on the emotional sphere; effects on marital and social life; coping strategies; family, and care and health system. The results of this study may provide justification for considering factors associated with family functioning when diagnosing a rare disease and deciding on treatment.

Publisher

Consejo General de Colegios Oficiales de Psicologos

Reference5 articles.

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