Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions
Author:
Funder
National Human Genome Research Institute
Publisher
Springer Science and Business Media LLC
Link
https://link.springer.com/content/pdf/10.1007/s11136-024-03623-1.pdf
Reference61 articles.
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2. Meng, L., Pammi, M., Saronwala, A., Magoulas, P., Ghazi, A. R., Vetrini, F., et al. (2017). Use of exome sequencing for infants in intensive care units: Ascertainment of severe single-gene disorders and effect on medical management. JAMA Pediatrics, 171, e173438. https://doi.org/10.1001/jamapediatrics.2017.3438
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1. EuroQol Toddler and Infant Populations (EQ-TIPS): Age-Related Differences in Performance;Children;2024-08-22
2. Physician and informal care use explained by the Pediatric Quality of Life Inventory (PedsQL) in children with suspected genetic disorders;Quality of Life Research;2024-05-14
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