Physician and informal care use explained by the Pediatric Quality of Life Inventory (PedsQL) in children with suspected genetic disorders-Reference-Cited by-同舟云学术

Physician and informal care use explained by the Pediatric Quality of Life Inventory (PedsQL) in children with suspected genetic disorders

Published:2024-05-14 Issue:7 Volume:33 Page:1997-2009
ISSN:0962-9343
Container-title:Quality of Life Research
language:en
Short-container-title:Qual Life Res

Author:

Berkalieva Asem,Kelly Nicole R.,Fisher Ashley,Hohmann Samuel F.,Abul-Husn Noura S.,Greally John M.,Horowitz Carol R.,Wasserstein Melissa P.,Kenny Eimear E.,Gelb Bruce D.,Ferket Bart S.^ORCID

Funder

National Human Genome Research Institute

National Institute on Minority Health and Health Disparities

Publisher

Springer Science and Business Media LLC

Link

https://link.springer.com/content/pdf/10.1007/s11136-024-03677-1.pdf

Reference51 articles.

1. Connolly, M. A., & Johnson, J. A. (1999). Measuring quality of life in paediatric patients. Pharmacoeconomics, 16(6), 605–625.

2. Gold, M., Franks, P., & Erickson, P. (1996). Assessing the health of the nation: The predictive validity of a preference-based measure and self-rated health. Medical Care, 34(2), 163–177.

3. Snyder, C. F., Aaronson, N. K., Choucair, A. K., Elliott, T. E., Greenhalgh, J., Halyard, M. Y., Hess, R., Miller, D. M., Reeve, B. B., & Santana, M. (2012). Implementing patient-reported outcomes assessment in clinical practice: A review of the options and considerations. Quality of Life Research, 21(8), 1305–1314.

4. Kaplan, R. M., & Hays, R. D. (2022). Health-related quality of life measurement in public health. Annual Review of Public Health, 43, 355–373.

5. Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.