Identifying patient‐important outcomes in polycystic kidney disease: An international nominal group technique study

Author:

Cho Yeoungjee123,Sautenet Benedicte4,Gutman Talia56ORCID,Rangan Gopala78,Craig Jonathan C9,Ong Albert C10,Chapman Arlene11,Ahn Curie12,Coolican Helen13,Kao Juliana T‐W1415,Gansevoort Ron16,Perrone Ronald D17,Harris Tess18,Torres Vicente19,Pei York20,Kerr Peter G21,Ryan Jessica21,Johnson David W123,Viecelli Andrea K1,Geneste Claire4,Kim Hyunsuk12,Kim Yaerim12,Oh Yun Kyu12,Teixeira‐Pinto Armando56,Logeman Charlotte56,Howell Martin56,Ju Angela56,Manera Karine E56,Tong Allison56

Affiliation:

1. Department of NephrologyPrincess Alexandra Hospital

2. Australasian Kidney Trials NetworkUniversity of Queensland

3. Translational Research Institute Brisbane Queensland Australia

4. Department of Nephrology Hypertension, Dialysis, Kidney TransplantationTours Hospital, SPHERE – INSERM 1246, University of Tours and Nantes Tours France

5. Sydney School of Public HealthThe University of Sydney Sydney New South Wales Australia

6. Centre for Kidney ResearchThe Children's Hospital at Westmead

7. Centre for Transplant and Renal Research, Westmead Institute for Medical ResearchThe University of Sydney

8. Department of Renal Medicine, Westmead HospitalWestern Sydney Local Health District Sydney New South Wales Australia

9. College of Medicine and Public HealthFlinders University Adelaide South Australia Australia

10. Academic Nephrology Unit, Department of Infection Immunity & Cardiovascular DiseaseUniversity of Sheffield Sheffield UK

11. Department of MedicineThe University of Chicago Chicago Illinois USA

12. Division of NephrologySeoul National University Hospital Seoul South Korea

13. Polycystic Kidney Disease Foundation of Australia Sydney Australia

14. School of MedicineFu Jen Catholic University and Fu Jen Catholic University Hospital

15. Department of Internal MedicineNational Taiwan University Hospital Taipei Taiwan

16. Faculty of Medical SciencesUniversity Medical Center Gronigen Gronigen the Netherlands

17. Division of Nephrology, Tufts Medical CenterTufts University School of Medicine Boston Massachusetts US

18. Polycystic Kidney Disease International London UK

19. Department of Nephrology and HypertensionMayo Clinic Rochester Minnestota USA

20. Division of Nephrology and Division of Genomic MedicineUniversity of Toronto Toronto Canada

21. Department of NephrologyMonash Medical Centre and Monash University Melbourne Victoria Australia

Publisher

Wiley

Subject

Nephrology,General Medicine

Reference26 articles.

1. Estimating prevalence in single-gene kidney diseases progressing to renal failure

2. USRDS. USRDS Annual Data Report: Atlas of Chronic Kidney Disease and End‐Stage Renal Diseases in the United States. National Institute of Diabetes and Digestive and Kidney Diseases 2011.

3. ANZDATA Registry 39th Annual Report: Chapter 1 Incidence of end stage kidney disease. Adelaide 2016.

4. Renal Function and Healthcare Costs in Patients with Polycystic Kidney Disease

5. European ADPKD Forum multidisciplinary position statement on autosomal dominant polycystic kidney disease care

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