1. PKD International, London, UK
2. Academic Department of Medical Genetics, University of Cambridge School of Clinical Medicine, Cambridge, UK
3. Dutch Kidney Patient Association (NVN), Bussum, The Netherlands
4. Mechanisms of Inherited Kidney Disorders Group, Institute of Physiology, Zurich Center for Integrative Human Physiology, University of Zurich, Zurich, Switzerland—representing the European Renal Association-European Dialysis and Transplant Association (ERA-EDTA)
5. Department of Gastroenterology and Hepatology, Radboud University, Nijmegen Medical Centre, Nijmegen, The Netherlands
6. Department of Internal Medicine, Division of Nephrology, Faculty of Medicine, Istanbul Bilim University, Istanbul, Turkey
7. Genetics Alliance and Patients Network for Medical Research and Health (EGAN), London, UK
8. Department of Nephrology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands
9. Department of Nephrology, Hospital Clínico Universitario, INCLIVA. Departamento de Medicina, Universitat de València, València, Spain
10. Academic Nephrology Unit, University of Sheffield Medical School, Sheffield, UK
11. Division of Nephrology, Cliniques Universitaires Saint-Luc, Université catholique de Louvain, Brussels, Belgium
12. Division of Nephrology and Hypertension, Department of Internal Medicine, Mayo Clinic, Rochester, MN, USA
13. European Kidney Transplant Association (EKITA), Department of Nephrology, Charité University, Berlin, Germany
14. European Society of Hypertension (ESH), Department of the Dean, Ghent University Hospital, Ghent, Belgium
15. European Society of Radiology (ESR), Department of Health Sciences – Radiology Section, University of Genoa, Genoa, Italy
16. Formerly European Dialysis and Transplant Nurses Association/European Renal Care Association (EDTNA-ERCA)Department of Nephrology, “Papageorgiou” General Hospital, Thessaloniki, Greece
17. European Society of Paediatric Nephrology (ESPN), Department of Pediatric Nephrology, University Hospitals Leuven, Leuven and Laboratory of Pediatrics, KU Leuven, Leuven, Belgium
18. European Society of Human Genetics (ESHG), Department of Human Genetics, Leiden University Medical Center, Leiden, The Netherlands
19. European Association of Urology (EAU), Department of Urology, University Hospitals of KU Leuven, Leuven, Belgium
20. European Kidney Health Alliance (EKHA), Emeritus Professor of Nephrology, Department of Nephrology, University Hospital Ghent, Ghent, Belgium