The demographics, treatment characteristics and quality of life of adult people with haemophilia in China - results from the HERO study-Reference-Cited by-同舟云学术

The demographics, treatment characteristics and quality of life of adult people with haemophilia in China - results from the HERO study

Published:2016-09-06 Issue:1 Volume:23 Page:89-97
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Sun J.¹,Zhao Y.²,Yang R.³,Guan T.⁴,Iorio A.⁵^ORCID,

Affiliation:

1. Nanfang Hospital; Southern Medical University; Guangzhou China

2. Peking Union Medical College Hospital; Beijing China

3. Institute of Hematology and Blood Diseases Hospital; CAMS & PUMC; Tianjin China

4. Hemophilia Home of China; Beijing China

5. Department of Clinical Epidemiology and Biostatistics, and Department of Medicine; McMaster University; Hamilton Ontario Canada

Funder

Novo Nordisk

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.13071/fullpdf

Reference23 articles.

1. Guidelines for the management of hemophilia;Srivastava;Haemophilia,2013

2. Haemophilia Experiences, Results and Opportunities (HERO) Study: influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia;Cassis;Haemophilia,2014

3. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings;Cassis;Haemophilia,2012

4. Quality of life in children and families with bleeding disorders;Bullinger;J Pediatr Hematol Oncol,2003

5. World Federation of Hemophilia World Federation of Hemophilia report on the annual global survey 2013 http://www1.wfh.org/publications/files/pdf-1591.pdf

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