Haemophilia Experiences, Results and Opportunities (HERO) Study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia-Reference-Cited by-同舟云学术

Haemophilia Experiences, Results and Opportunities (HERO) Study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia

Published:2014-05-07 Issue:4 Volume:20 Page:e287-e295
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Cassis F. R. M. Y.¹,Buzzi A.²,Forsyth A.³,Gregory M.⁴,Nugent D.⁵,Garrido C.⁶,Pilgaard T.⁷,Cooper D. L.⁸,Iorio A.⁹

Affiliation:

1. Hemophilia Center; University of São Paulo Faculty of Medicine Clinics Hospital; São Paulo Brazil

2. Fondazione Paracelso; Milan Italy

3. RUSH Hemophilia and Thrombophilia Center; Chicago IL USA

4. UK Haemophilia Society; London UK

5. Children's Hospital of Orange County and The Center for Inherited Blood Disorders; Orange CA USA

6. Asociación Venezolana para la Hemofilia (AVH); Venezuela

7. Novo Nordisk A/S; Bagsvaerd Denmark

8. Novo Nordisk Inc.; Princeton NJ USA

9. Health Information Research Unit; Department of Clinical Epidemiology and Biostatistics; McMaster University; Hamilton Ontario Canada

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.12454/fullpdf

Reference21 articles.

1. The impact of severe haemophilia on the social status and quality of life among Austrian haemophiliacs;Hartl;Haemophilia,2008

2. Asking fathers: a study of psychosocial adaptation;Herrick;Haemophilia,2004

3. Social participation of patients with hemophilia in the Netherlands;Plug;Blood,2008

4. Social challenges for children with hemophilia: child and parent perspectives;Williams;Soc Work Health Care,2011

5. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings;Cassis;Haemophilia,2012

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