Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies-Reference-Cited by-同舟云学术

Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies

Published:2021-02-16 Issue:2 Volume:27 Page:305-313
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Kuijlaars Isolde A. R.¹^ORCID,Net Janjaap²^ORCID,Bouskill Vanessa³,Hilliard Pamela⁴,Juodyte Agne⁵,Khair Kate⁶^ORCID,Trakymiene Sonata Saulyte⁵^ORCID,Fischer Kathelijn¹^ORCID

Affiliation:

1. Van Creveldkliniek University Medical Center UtrechtUtrecht University Utrecht The Netherlands

2. Center for Child Development, Exercise and Physical Literacy University Medical Center UtrechtUtrecht UniversityUniversity Children’s Hospital Utrecht The Netherlands

3. Department of Nursing Division of Hematology/Oncology The Hospital for Sick Children Toronto ON Canada

4. Child Health Evaluative SciencesThe Hospital for Sick Children Toronto ON Canada

5. Clinic of Children’s Diseases Faculty of Medicine Vilnius University Vilnius Lithuania

6. Centre for Outcomes and Experience Research in Children’s Health, Illness and Disability (ORCHID Great Ormond Street Hospital for Children NHS Foundation Trust London UK

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14241

Reference16 articles.

1. Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal)

2. Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List

3. Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List

4. Functional limitations in Romanian children with haemophilia: further testing of psychometric properties of the Paediatric Haemophilia Activities List

5. World Health Organization.International Classification of Functioning Disability and Health: Children & Youth Version: ICF‐CY2007.

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1. Validity and reliability test of the Indonesian version of the PedHALshort questionnaire;Haemophilia;2024-04-05

2. Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks;Research and Practice in Thrombosis and Haemostasis;2023-08

3. Physical activity limitations in children with severe hemophilia A. does emicizumab make a difference?;Journal of the Pakistan Medical Association;2023-05-25

4. Validation of the pedHAL _short and HAL _short in Dutch children and adults with haemophilia;Haemophilia;2022-07-29

5. Shortening the Haemophilia Activities List (HAL) from 42 items to 18 items;Haemophilia;2021-09-08