Differences in the Information Needs of Parents With a Child With a Genetic Syndrome: A Cross-Syndrome Comparison
Author:
Affiliation:
1. University of Birmingham, Birmingham; UK
Publisher
Wiley
Subject
Public Health, Environmental and Occupational Health,Health (social science)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/jppi.12231/fullpdf
Reference36 articles.
1. Communication, cognitive development and behavior in children with Cornelia de Lange syndrome (CdLS): Preliminary results;Ajmone;American Journal of Medical Genetics Part B: Neuropsychiatric Genetics,2014
2. Key health outcomes for children and young people with neurodisability: Qualitative research with young people and parents;Allard;BMJ Open,2014
3. The prevalence and phenomenology of self-injurious and aggressive behaviour in genetic syndromes;Arron;Journal of Intellectual Disability Research,2011
4. Descriptive epidemiology of Cornelia de Lange syndrome in Europe;Barisic;American Journal of Medical Genetics Part A,2008
5. The behavioural phenotype of Cornelia de Lange syndrome: A study of 56 individuals;Basile;Journal of Intellectual Disability Research,2007
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