Time for NIH to lead on data sharing-Reference-Cited by-同舟云学术

Time for NIH to lead on data sharing

Published:2020-03-20 Issue:6484 Volume:367 Page:1308-1309
ISSN:0036-8075
Container-title:Science
language:en
Short-container-title:Science

Author:

Sim Ida¹²,Stebbins Michael³,Bierer Barbara E.⁴⁵,Butte Atul J.¹,Drazen Jeffrey⁶,Dzau Victor⁷,Hernandez Adrian F.⁸,Krumholz Harlan M.⁹,Lo Bernard¹⁰,Munos Bernard¹¹,Perakslis Eric⁸,Rockhold Frank⁸,Ross Joseph S.⁹,Terry Sharon F.¹²,Yamamoto Keith R.¹,Zarin Deborah A.⁴,Li Rebecca²¹³

Affiliation:

1. University of California San Francisco, San Francisco, CA, USA.

2. Vivli, Cambridge, MA, USA.

3. Science Advisors, Washington, DC, USA.

4. Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard University, Cambridge, MA, USA.

5. Department of Medicine, Harvard Medical School and Brigham and Women's Hospital, Boston, MA, USA.

6. Pulmonary and Communications Divisions, Department of Medicine, Brigham and Women's Hospital, Boston, MA, USA.

7. National Academy of Medicine, Washington, DC, USA.

8. Duke University, Durham, NC, USA.

9. Yale University, New Haven, CT, USA.

10. Greenwall Foundation, New York, NY, USA.

11. FasterCures (Milken Institute), Washington, DC, USA.

12. Genetic Alliance, Washington, DC, USA.

13. Center for Bioethics, Harvard Medical School, Boston, MA, USA.

Abstract

A draft policy is generally supportive but should start mandating data sharing

Publisher

American Association for the Advancement of Science (AAAS)

Subject

Multidisciplinary

Reference13 articles.

1. The FAIR Guiding Principles for scientific data management and stewardship

2. Trialists’ Intent to Share Individual Participant Data as Disclosed at ClinicalTrials.gov

3. J. P. Holdren, “Increasing Access to the Results of Federally Funded Scientific Research” (Office of Science and Technology Policy, 2013); https://obamawhitehouse.archives.gov/sites/default/files/microsites/ostp/ostp_public_access_memo_2013.pdf.

4. NIH, “Plan for Increasing Access to Scientific Publications” (NIH, 2015); https://grants.nih.gov/grants/nih-public-access-plan.pdf.

5. Data Sharing at a Crossroads

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