Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study-Reference-Cited by-同舟云学术

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Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study

Published:2020-08-24 Issue:1-2 Volume:22 Page:147-150
ISSN:2167-8421
Container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
language:en
Short-container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Author:

Berry James D.¹,Bedlack Richard²,Mathews Debra³,Agnese Wendy⁴,Apple Stephen⁵

Affiliation:

1. Sean M. Healey and AMG Center for ALS, Massachusetts General Hospital, Boston, MA, USA

2. Duke University School of Medicine, Durham, NC, USA

3. Johns Hopkins Berman Institute of Bioethics, Baltimore, MD, USA

4. Formerly Mitsubishi Tanabe Pharma America, Inc., Jersey City, NJ, USA, and

5. Mitsubishi Tanabe Pharma America, Inc., Jersey City, NJ, USA

Funder

Mitsubishi Tanabe Pharma America, Inc

Publisher

Informa UK Limited

Subject

Neurology (clinical),Neurology

Link

https://www.tandfonline.com/doi/pdf/10.1080/21678421.2020.1804939

Reference11 articles.

1. Patient Engagement Practices in Clinical Research among Patient Groups, Industry, and Academia in the United States: A Survey

2. Revised Airlie House consensus guidelines for design and implementation of ALS clinical trials

3. Enhanced invitation methods and uptake of health checks in primary care: randomised controlled trial and cohort study using electronic health records

4. The PCORI Engagement Rubric: Promising Practices for Partnering in Research

Cited by 2 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS study;Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration;2024-03-22

2. ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors;Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration;2019-11-15

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