Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS study-Reference-Cited by-同舟云学术

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Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS study

Published:2024-03-22 Issue:5-6 Volume:25 Page:634-643
ISSN:2167-8421
Container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
language:en
Short-container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Author:

Genuis Shelagh K.¹,Luth Westerly¹,Magnussen Claire²,Vande Velde Christine³,Taylor David⁴, ,Johnston Wendy S.¹

Affiliation:

1. Division of Neurology, Department of Medicine, University of Alberta, Edmonton, AB, Canada

2. Montreal Neurological Institute-Hospital, McGill University, Montreal, QC, Canada

3. Department of Neurosciences, Université de Montréal, Montreal, QC, Canada

4. ALS Society of Canada, Toronto, ON, Canada, and

Publisher

Informa UK Limited

Link

https://www.tandfonline.com/doi/pdf/10.1080/21678421.2024.2328599

Reference61 articles.

1. CAPTURE ALS: the comprehensive analysis platform to understand, remedy and eliminate ALS

2. Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group

3. The importance of measuring the impact of patient-oriented research

4. Evaluating patient and stakeholder engagement in research: moving from theory to practice

5. Values associated with public involvement in health and social care research: a narrative review

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