Patient Engagement Practices in Clinical Research among Patient Groups, Industry, and Academia in the United States: A Survey

Author:

Smith Sophia K.,Selig Wendy,Harker Matthew,Roberts Jamie N.,Hesterlee Sharon,Leventhal David,Klein Richard,Patrick-Lake Bray,Abernethy Amy P.

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

Reference22 articles.

1. National Library of Medicine. Health Hotlines: Directory of Information Resources Online. Available: http://healthhotlines.nlm.nih.gov/. Accessed 27 April 2015.

2. Forging stronger partnerships between academic health centers and patient-driven organizations;EK Gallin;Davis P,2013

3. Gallin E, Bond E, Califf R, Crowley W, Davis P, Galbraith R, et al. Partnerships with patient advocacy groups/voluntary health organizations can bridge gaps in clinical research. White paper. 2011. Available: http://www.clinicalresearchforum.org/vertical/sites/%7B97FFC4B0-AA89-45B2-8F74-9693F47D3CB0%7D/uploads/2011_CRF_Whitepaper_partnering_with_VHOs.pdf. Accessed 1 March 2015.

4. Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data;JH Frost;J Med Internet Res,2008

5. PCORnet. The National Patient-Centered Clinical Research Network. Patient-powered research networks (PPRNs). Available: http://www.pcornet.org/patient-powered-research-networks/. Accessed 1 March 2015.

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