Strategies used to engage hard-to-reach populations in childhood disability research: a scoping review

Author:

Gonzalez Miriam12,Phoenix Michelle34,Saxena Shikha5,Cardoso Roberta2,Canac-Marquis Michelle6,Hales Lindsay7,Putterman Connie89,Shikako-Thomas Keiko1210ORCID

Affiliation:

1. Department of Physical and Occupational Therapy, McGill University, Montréal, Canada

2. Research Institute of the McGill University Health Centre, McGill University, Montréal, Canada

3. School of Rehabilitation Science and CanChild, McMaster University, Hamilton, Canada

4. Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada

5. Department of Human Kinetics, University of Ottawa, Ottawa, Canada

6. Centre for Innovative Medicine, Research Institute of the McGill University Health Centre, Montréal, Canada

7. McConnell Resource Centre, McGill University Health Centre, Montréal, Canada

8. CHILDBRIGHT Knowledge Translation Committee, CHILD-BRIGHT Network, Montréal, Canada

9. Canada-Israel Autism Research Initiative, Toronto, Canada

10. Canada Research Chair in Childhood Disability: Participation and Knowledge Translation, McGill University, Montréal, Canada

Funder

Canadian Institutes of Health Research

McGill University Health Centre, and Centre for Interdisciplinary Research in Rehabilitation

Publisher

Informa UK Limited

Subject

Rehabilitation

Reference60 articles.

1. CIHR. Strategy for patient-oriented research: patient engagement framework. 2014. Available from: http://www.cihr-irsc.gc.ca/e/documents/spor_framework-en.pdf

2. Patient engagement in research: a systematic review

3. Tufts CTSI:

4. A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities

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