Affiliation:
1. School of Rehabilitation Sciences, CanChild McMaster University Hamilton Ontario Canada
2. School of Rehabilitation Sciences McMaster University Hamilton Ontario Canada
3. Ahousaht First Nation Ahousat British Colombia Canada
4. Indigenous Project Coordinator, School of Medicine Toronto Metropolitan University Toronto Ontario Canada
5. Health Research Methods, Evidence, and Impact (Health Policy) McMaster University Hamilton Ontario Canada
6. Global Health McMaster University Hamilton Ontario Canada
7. School of Social Work and Indigenous Studies Department McMaster University; Algonquin/Mohawk, Member of the Six Nations of the Grand River Canada
8. Health Policy and Management, DeGroote School of Business McMaster University Hamilton Ontario Canada
9. McMaster University Hamilton Canada
Abstract
AbstractBackgroundCocreation has the potential to engage people with lived and living experiences in the design and evaluation of health and social services. However, guidance is needed to better include people from equity‐deserving groups (EDGs), who are more likely to face barriers to participation, experience ongoing or historical harm, and benefit from accessible methods of engagement.ObjectiveThe aim of this international forum (CoPro2022) was to advance a collective vision for equity‐based cocreation.DesignA participatory process of engagement in experiential colearning and arts‐based creative and reflective dialogue. Visual prototypes were created and synthesised to generate a collective vision for inclusive equity‐based cocreation.Setting and ParticipantsThe Forum was held at the Gathering Place by the Grand River in Ohsweken, Ontario, Canada. A total of 48 participants attended the forum. They were purposely invited and have intersecting positionalities (21 academic experts, six experience experts, 10 trainees, and 11 members of EDGs) from nine countries (Bangladesh, Botswana, Canada, England, Italy, Norway, Scotland, Singapore, Sweden).CoPro2022 ActivitiesCoPro2022 was an immersive experience hosted on Indigenous land that encouraged continuous participant reflection on their own worldviews and those of others as participants openly discussed the challenges and opportunities with engaging EDGs in cocreation activities. Visual prototypes and descriptions created in small groups were informed by participants' reflections on the panel presentations at the Forum and their own experiences with equity‐based cocreation. Following the event, the authorship team inductively coded themes from the prototype descriptions and met to discuss the cross‐cutting themes. These informed the design of an illustrated collective vision for Equity Based Co‐Creation (EqCC).ResultsSix prototypes were cocreated by each small group to illustrate their vision for EqCC. Within these, four cross‐cutting themes were identified: (i) go to where people are, (ii) nurture relationships and creativity, (iii) reflect, replenish and grow, (iv) and promote thriving and transformation. These four themes are captured in the Collective EqCC Vision to guide a new era of inclusive excellence in cocreation activities.Patient or Public ContributionService users, caregivers, and people with lived experience were involved in leading the design of the CoPro2022 and co‐led the event. This included activities at the event such as presenting, facilitating small and large group discussion, leading art‐based activities, and reflecting with the team on the lessons learned. People with lived experience were involved in the analysis and knowledge sharing from this event. Several members of the research team (students and researchers) also identified as members of EDGs and were invited to draw from their personal and academic knowledge.