The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents
Author:
Publisher
Wiley
Subject
Genetics (clinical)
Link
http://link.springer.com/content/pdf/10.1007/s10897-016-9944-y.pdf
Reference44 articles.
1. Ablon, J. (1999). Living with genetic disorder: the impact of neurofibromatosis 1. Westport, CT: Auburn House.
2. Barke, J., Harcourt, D., & Coad, J. (2014). ‘It’s Like a Bag of Pick and Mix–You don’t Know What you Are Going to Get’: Young people’s Experience of Neurofibromatosis Type 1. Journal of Advanced Nursing, 70(7), 1594–1603.
3. Barke, J., Coad, J., & Harcourt, D. (2016). Parents’ Experiences of Caring for a Young Person with Neurofibromatosis Type 1 (NF1): a Qualitative Study. Journal of Community Genetics, 7(1), 33–39.
4. Barton, B., & North, K. (2004). Social Skills of Children with Neurofibromatosis Type 1. Developmental Medicine and Child Neurology, 46(8), 553–563.
5. Ben-Tovim, D. I., & Walker, M. K. (1995). Body Image, Disfigurement and Disability. Journal of Psychosomatic Research, 39(3), 283–291.
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