Clinical characteristics and quality of life, depression, and anxiety in adults with neurofibromatosis type 1: A nationwide study-Reference-Cited by-同舟云学术

Clinical characteristics and quality of life, depression, and anxiety in adults with neurofibromatosis type 1: A nationwide study

Published:2020-06-02 Issue:7 Volume:182 Page:1704-1715
ISSN:1552-4825
Container-title:American Journal of Medical Genetics Part A
language:en
Short-container-title:Am J Med Genet

Author:

Doser Karoline¹²^ORCID,Andersen Elisabeth Wreford³,Kenborg Line¹,Dalton Susanne Oksbjerg⁴⁵,Jepsen Jens Richardt Møllegaard⁶⁷,Krøyer Anja¹,Østergaard John⁸^ORCID,Hove Hanne⁹,Sørensen Sven Asger¹⁰,Johansen Christoffer²¹¹,Mulvihill John¹²,Winther Jeanette Falck¹¹³,Bidstrup Pernille Envold²¹⁴

Affiliation:

1. Childhood Cancer Research Group Danish Cancer Society Research Center Copenhagen Denmark

2. Psychological Aspects of Cancer Danish Cancer Society Research Center Copenhagen Denmark

3. Statistics and Pharmacoepidemiology Danish Cancer Society Research Center Copenhagen Denmark

4. Survivorship and Inequality in Cancer Danish Cancer Society Research Center Copenhagen Denmark

5. Department of Clinical Oncology and Palliative Care Zealand University Hospital Næstved Denmark

6. Center for Clinical Intervention and Neuropsychiatric Schizophrenia Research and Center for Neuropsychiatric Schizophrenia Research Mental Health Services, Capital Region of Denmark, University of Copenhagen Copenhagen Denmark

7. Child and Adolescent Mental Health Center Mental Health Services Capital Region Copenhagen, University of Copenhagen Copenhagen Denmark

8. Center for Rare Disease Aarhus University Hospital Aarhus Denmark

9. The RAREDIS Database, Center for Rare Diseases Copenhagen University Hospital and Aarhus University Copenhagen Denmark

10. Department of Neurogenetics Institute of Cellular and Molecular Medicine, The Panum Institute, University of Copenhagen Copenhagen Denmark

11. Oncology Clinic, Finsen Center Copenhagen Denmark

12. Department of Pediatrics University of Oklahoma Norman Oklahoma USA

13. Faculty of Health, Department of Clinical Medicine Aarhus University and University Hospital Aarhus Denmark

14. Department of Psychology University of Copenhagen Copenhagen Denmark

Funder

Medical Research and Materiel Command

Publisher

Wiley

Subject

Genetics(clinical),Genetics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/ajmg.a.61627

Reference42 articles.

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2. Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR)

3. The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents

4. Beaton D. Bombardier C. Guillemin F. &Ferraz M. B.(1998).Recommendations for the cross‐cultural adaptation of health status measures. Retrieved fromhttp://med.umn.edu/ortho/prod/groups/med/@pub/@med/@ortho/documents/asset/med_asset_360072.pdf

5. Neurofibromatose de type 1

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