The Subjective Experience of Patients Diagnosed with Hereditary Hemorrhagic Telangiectasia: a Qualitative Study
Author:
Funder
Fondation Maladies Rares
Publisher
Wiley
Subject
Genetics(clinical)
Link
http://link.springer.com/article/10.1007/s10897-016-0033-z/fulltext.html
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4. Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: a theoretically based approach. Journal of Personality and Social Psychology, 56(2), 267–283.
5. Chapman, E., & Smith, J. A. (2002). Interpretative phenomenological analysis and the new genetics. Journal of Health Psychology, 7, 125–130.
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1. Epistaxis in people with hereditary haemorrhagic telangiectasia: surgical management and psychological impact;British Journal of Hospital Medicine;2021-11-02
2. Holding Secrets While Living With Life-Threatening Illness: Normalizing Patients’ Decisions to Reveal or Conceal;Qualitative Health Research;2019-11-19
3. Difficulties adapting to Nail‐Patella syndrome: A qualitative study of patients' perspectives;Journal of Genetic Counseling;2019-07-16
4. Living with Hereditary Haemorrhagic Telangiectasia: stigma, coping with unpredictable symptoms, and self-advocacy;Psychology & Health;2019-03-31
5. Thalidomide for the Management of Bleeding Episodes in Patients with Hereditary Hemorrhagic Telangiectasia: Effects on Epistaxis Severity Score and Quality of Life;Turkish Journal of Hematology;2019-02-06
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