Difficulties adapting to Nail‐Patella syndrome: A qualitative study of patients' perspectives-Reference-Cited by-同舟云学术

Difficulties adapting to Nail‐Patella syndrome: A qualitative study of patients' perspectives

Published:2019-07-16 Issue:5 Volume:28 Page:1011-1020
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:Jrnl of Gene Coun

Author:

Geerts‐Crabbé Laura¹²³^ORCID,Antoine Pascal³,Brugallé Elodie³,Ghoumid Jamal⁴,Bellengier Laurence⁴,Edery Patrick⁵,Heron Delphine⁶,Manouvrier‐Hanu Sylvie⁴,Fantini‐Hauwel Carole²

Affiliation:

1. National Fund for Scientific Research (FRS‐FNRS) – Télévie Brussels Belgium

2. Center of Clinical Psychology, Psychopathology and Psychosomatic Research Free University of Brussels Brussels Belgium

3. SCALab – Cognitives and Affectives Sciences, National Center of Scientific Research (CNRS UMR 9193) University of Lille Lille France

4. RADEME ‐ Maladies Rares du Développement embryonnaire et du Métabolisme: du phénotype au génotype et à la Fonction, CHU Lille University of Lille Lille France

5. Lyon Neuroscience Research Center (CRNL) National Center of Scientific Research (CNRS UMR 5292) Lyon France

6. Département de Génétique et Centre de Référence Déficiences Intellectuelles de Causes Rares et GRC UPMC “Déficiences Intellectuelles et Autisme”, Assistance Publique‐Hôpitaux de Paris Groupe Hospitalier Pitié‐Salpêtrière Paris France

Publisher

Wiley

Subject

Genetics (clinical)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1153

Reference38 articles.

1. Saisir l’expérience : présentation de l’analyse phénoménologique interprétative comme méthodologie qualitative en psychologie

3. Chronic illness - a disruption in life: identity-transformation among women with chronic fatigue syndrome and fibromyalgia

4. Comparability of Telephone and Face-to-Face Interviews in Assessing Patients with Posttraumatic Stress Disorder

5. An overview on“hereditary onycho-osteodysplasia (Hood Syndrome)/Nail patella syndrome”

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