Living with Hereditary Haemorrhagic Telangiectasia: stigma, coping with unpredictable symptoms, and self-advocacy-Reference-Cited by-同舟云学术

Living with Hereditary Haemorrhagic Telangiectasia: stigma, coping with unpredictable symptoms, and self-advocacy

Published:2019-03-31 Issue:10 Volume:34 Page:1141-1160
ISSN:0887-0446
Container-title:Psychology & Health
language:en
Short-container-title:Psychology & Health

Author:

Sexton Adrienne¹²^ORCID,Gargan Bridget²,Taylor Jessica¹^ORCID,Bogwitz Michael¹^ORCID,Winship Ingrid¹³^ORCID

Affiliation:

1. Genomic Medicine, Royal Melbourne Hospital, Parkville, Victoria, Australia;

2. Department of Paediatrics, The University of Melbourne, Parkville, VIC, Australia;

3. Department of Medicine, The University of Melbourne, Parkville VIC, Australia

Publisher

Informa UK Limited

Subject

Public Health, Environmental and Occupational Health,Applied Psychology,Management Science and Operations Research,Mechanical Engineering,Energy Engineering and Power Technology

Link

https://www.tandfonline.com/doi/pdf/10.1080/08870446.2019.1583341

Reference55 articles.

1. The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents

2. Hereditary haemorrhagic telangiectasia: a questionnaire based study to delineate the different phenotypes caused by endoglin and ALK1 mutations

3. Juvenile polyposis syndrome

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