Abstract
AbstractAutism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents’ perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis.
Funder
Sigma Theta Tau International
National Center for Advancing Translational Sciences
Vanderbilt University School of Nursing
National Association of Pediatric Nurse Practitioners
Karolinska Institute
Publisher
Springer Science and Business Media LLC
Subject
Developmental and Educational Psychology
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