Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team

Author:

Bonfim Tassia de Arruda1ORCID,Giacon-Arruda Bianca Cristina Ciccone2ORCID,Galera Sueli Aparecida Frari3ORCID,Teston Elen Ferrraz2ORCID,Nascimento Francisneide Gomes Pego Do4ORCID,Marcheti Maria Angélica2ORCID

Affiliation:

1. Universidade de São Paulo, Brazil

2. Universidade Federal de Mato Grosso do Sul, Brazil

3. Universidade de São Paulo, Brazil; Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq), Brazil

4. Escola Paulista de Enfermagem, Brazil

Abstract

Abstract Objective: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. Method: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three multidisciplinary teams from the Health Care Network of a municipality in the state of Mato Grosso do Sul, Brazil. The data were collected through two focus groups with each team, organized with the support of the Atlas.ti 8 Qualitative Data Analysis® software and submitted to Thematic Content Analysis. Results: the findings show actions centered on specific situations, especially on the demands and needs arising from the child’s care and atypical behavior. Influencing factors for family care, such as work overload and little professional experience, show the weakness of multiprofessional care and the invisibility of the family as a care unit. Conclusion: the need is highlighted to review functioning of the network for the multiprofessional care of children and their families and how such network is organized. It is recommended to offer permanent education actions that contribute to the qualification of multiprofessional teams in the care of families of children in the autism spectrum.

Publisher

FapUNIFESP (SciELO)

Reference32 articles.

1. Healthcare providers’ experiences with autism: a scoping review;Morris R;J Autism Dev Disord,2019

2. Parental Stress and Children’s Self-Regulation Problems in Families with Children with Autism Spectrum Disorder (ASD);Efstratopoulou M;J Intell,2022

3. Peer Support Experienced by Mothers of Children With Congenital Heart Defects in Sweden;Carlsson T;J Fam Nurs,2022

4. The mechanisms underpinning peer support: a literature review;Watson E;J Ment Health,2019

5. Waves of family hope: narratives of families in the context of pediatric chronic illness;Leite ACAB;Rev. Latino-Am. Enfermagem,2021

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3