Communicating a diagnosis of Autism Spectrum Disorder - a qualitative study of parents’ experiences

Author:

Abbott Mandy1,Bernard Paul2,Forge Jenny3

Affiliation:

1. Northumberland Tyne and Wear NHS Trust, UK

2. Darlington CAMHS, Tees Esk and Wear Valleys NHS Foundation Trust, UK

3. Durham Dales CAMHS, Tees Esk and Wear Valleys NHS Foundation Trust, UK

Abstract

Not enough is known about parents’ experiences of receiving the news that their child warrants a diagnosis of Autism Spectrum Disorder (ASD). Sharing this information with parents is an important and difficult part of Child and Adolescent Mental Health (CAMH) practice. Qualitative methodology was used to explore the experiences of the ‘feedback session’ with nine sets of parents in a community Child and Adolescent Mental Health Service (CAMHS) in North East England. Parents gave vivid accounts of their experiences and described issues relating to the structure, style and content of the session. The experiences of CAMHS users should inform the development of good practice in this important area.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Clinical Psychology,General Medicine,Pediatrics, Perinatology and Child Health

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