In the public interest: assessing expert and stakeholder influence in public deliberation about biobanks

Author:

MacLean Samantha1,Burgess Michael M.2

Affiliation:

1. Health Research Methodology Program, Department of Clinical Epidemiology and Biostatistics, at McMaster University,

2. W. Maurice Young Centre for Applied Ethics and in the Department of Medical Genetics at the University of British Columbia,

Abstract

Providing technical and experiential information without overwhelming participants’ perspectives presents a major challenge to public involvement in policy decisions. This article reports the design and analysis of a case study on incorporating expert and stakeholder knowledge without including them as deliberators, while supporting deliberative participants’ ability to introduce and critically assess different perspectives. Analysis of audio-recorded deliberations illustrates how expert and stakeholder knowledge was cited, criticized and incorporated into deliberations. In conclusion, separating experts and stakeholders from deliberations may be an important prima facie principle when the goal is to enhance citizen representation on technical issues and related policy.

Publisher

SAGE Publications

Subject

Arts and Humanities (miscellaneous),Developmental and Educational Psychology,Communication

Reference35 articles.

1. Deliberations about deliberative methods: issues in the design and evaluation of public participation processes

2. Burgess, M.M. and Tansey, J. ( 2008) "Democratic Deficit and the Politics of ‘Informed and Inclusive’ Consultation," in E. Einseidel and R. Parker (eds) Hindsight and Foresight on Emerging Technologies, pp. 275-88. Vancouver : UBC Press.

3. Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement

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