Use of early intervention for young children with autism spectrum disorder across Europe

Author:

Salomone Erica1,Beranová Štěpánka2,Bonnet-Brilhault Frédérique3,Briciet Lauritsen Marlene4,Budisteanu Magdalena5,Buitelaar Jan6,Canal-Bedia Ricardo7,Felhosi Gabriella8,Fletcher-Watson Sue9,Freitag Christine10,Fuentes Joaquin11,Gallagher Louise12,Garcia Primo Patricia13,Gliga Fotinica14,Gomot Marie3,Green Jonathan15,Heimann Mikael16,Jónsdóttir Sigridur Loa17,Kaale Anett18,Kawa Rafal19,Kylliainen Anneli20,Lemcke Sanne4,Markovska-Simoska Silvana21,Marschik Peter B22,McConachie Helen23,Moilanen Irma24,Muratori Filippo25,Narzisi Antonio25,Noterdaeme Michele26,Oliveira Guiomar27,Oosterling Iris6,Pijl Mirjam6,Pop-Jordanova Nada21,Poustka Luise28,Roeyers Herbert29,Rogé Bernadette30,Sinzig Judith31,Vicente Astrid32,Warreyn Petra29,Charman Tony1

Affiliation:

1. King’s College London, UK

2. Charles University and University Hospital Motol, Czech Republic

3. Université François Rabelais de Tours, France

4. Aarhus University Hospital, Denmark

5. Titu Maiorescu University, Romania

6. Radboud University, The Netherlands

7. Universidad de Salamanca, Spain

8. Budapest and Kispest Child Mental Health Institute, Hungary

9. University of Edinburgh, UK

10. Goethe-Universität Frankfurt am Main, Germany

11. Policlinica Gipuzkoa, Spain

12. Trinity College Dublin, Ireland

13. Rare Diseases Research Institute (IIER) of the National Institute of Health of Spain (IIER-NIH Carlos III), Spain

14. University of Bucharest, Romania

15. Booth Hall Children’s Hospital, UK

16. Linköping University, Sweden

17. State Diagnostic and Counselling Centre, Iceland

18. Oslo University Hospital, Norway

19. University of Warsaw, Poland

20. University of Tampere, Finland

21. Macedonian Academy of Sciences and Arts, Macedonia

22. Medical University of Graz, Austria

23. Newcastle University, UK

24. Oulu University Hospital and University of Oulu, Finland

25. IRCCS Stella Maris Foundation, Italy

26. Josefinum, Germany

27. Centro Hospitalar e Universitário de Coimbra, Portugal

28. University of Heidelberg, Germany

29. Ghent University, Belgium

30. Université de Toulouse – Le Mirail, France

31. LVR-Klinik Bonn, Germany

32. Instituto Nacional de Saúde Doutor Ricardo Jorge, Portugal

Abstract

Little is known about use of early interventions for autism spectrum disorder in Europe. Parents of children with autism spectrum disorder aged 7 years or younger ( N = 1680) were recruited through parent organisations in 18 European countries and completed an online survey about the interventions their child received. There was considerable variation in use of interventions, and in some countries more than 20% of children received no intervention at all. The most frequently reported interventions were speech and language therapy (64%) and behavioural, developmental and relationship-based interventions (55%). In some parts of Europe, use of behavioural, developmental and relationship-based interventions was associated with higher parental educational level and time passed since diagnosis, rather than with child characteristics. These findings highlight the need to monitor use of intervention for children with autism spectrum disorder in Europe in order to contrast inequalities.

Publisher

SAGE Publications

Subject

Developmental and Educational Psychology

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