Ethical Research in Refugee Communities and the Use of Community Participatory Methods

Author:

Ellis B. Heidi1,Kia-Keating Maryam2,Yusuf Siraad Aden3,Lincoln Alisa4,Nur Abdirahman5

Affiliation:

1. Children's Hospital Boston and Harvard Medical School,

2. University of California, Santa Barbara,

3. Whittier Street Health Center,

4. Northeastern University,

5. Somali Development Center,

Abstract

This article describes the distinct challenges associated with conducting ethical research with refugees. A case example of an ongoing study of stigma and access to mental health treatment among Somali refugee adolescents resettled in the USA is presented. In developing the study, standard research paradigms were critically examined in order to take account of the unique aspects of Somali culture and experience. Community participatory methods were adopted to uphold both ethical and methodological rigor in the research. A participatory approach for developing ethical protocols within different refugee communities is recommended.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Health (social science)

Reference56 articles.

1. Overcoming Barriers to Effective Community-Based Participatory Research in US Medical Schools

2. Ethical Principles of Psychologists and Code of Conduct

3. Armstrong, J.G. (1996). Emotional issues and ethical aspects of trauma research. In E. B. Carlson (Ed.), Trauma research methodology (pp. 174—187). Lutherville, MD: Sidran Press.

4. Research participants telling the truth about their lives: The ethics of asking and not asking about abuse.

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